Monday, August 31, 2009

Monday...August 31st....2009

She's at it again!!!!!!! Help!!!!!!!

Mr. Wood went to the dentist today for a cleaning and checkup...Mrs. Wood was supposed to go in early tomorrow to have her two new crowns cemented.....and the nice people at the dentist office found a way to get Mrs. Wood in today to save time and a trip tomorrow (even though we are dropping off dog Sadie with son Jeff in Bend tomorrow....but now we then can go directly to the airport)......

Did Mrs. Wood cooperate and merely have two crowns cemented in and that was all there was to it?????? NOPE.....please remember she stays up nights thinking of "new stuff" (last week it was the ear...remember?)

She reported to the dentist that the gum infection she had was not healing.....upon inspection, the dentist immediately send her down the block to see the specialist.....the Endodontist. The Endodontist , after an examination, declared that Linda's tooth in the affected area was dead..."dead".....of course it is supporting a bridge....do you hear the cash register clinking yet?????....then he says she needs a Periodontist......and then.....

The story behind this is that the two crowns were done for cosmetic reasons...to replace two teeth that were bonded years ago...this is part of a multiyear plan to "dress up Linda's mouth" within the insurance cap (ie., no out of pocket cost)....THE PROBLEM???? The crowns were to use up the rest of the cap for this insurance year with no maintenance or repairs needed......so now....with this Endodontist and Periodontist .....and...and....all cash ($)....no insurance left...OUCH!

The other bad news is she has no warranty...I can't trade her....I'm stuck with her....(am I going to get a raft of "you know what" having said that?)....

Tomorrow we get up slowly and pack...and head to Anchorage late in the day...back next Monday morning.

Sunday, August 30, 2009

Sunday....August 30th....2009

The following is the piece on BLOGS that I wrote for the DEFEAT CANCER program.......I think it has insights worth letting all see....

A BLOG and Cancer

After my wife Linda was diagnosed with lung cancer over two years ago and after we “adjusted” to our “new life” of treatments and all associated with this disease, we wondered how we would deal with the onslot of phone calls, requests for updates, etc., etc.. We decided it was important to let family, friends and all those interested know what was going on and further, to make sure we were consistent and timely with our information. Our “vehicle” for accomplishing this goal?......a BLOG.

There are many ways of communicating on the internet…twitter, facebook, etc…etc… Our choice, was a BLOG on Google…www.blogspot.com. It was free. It provided us with a simple colorful platform for communciations, including the addition of pictures. The good news is that it is very simple to set up as opposed to a personal web site. The most special surpise of all was that the BLOG allowed for readers to leave comments…..comments that we look forward to reading each and every time a BLOG is written.

To see what this all has looked like…..please go to
www.linda-lou.blogspot.com and see for yourself…..two and a half years of reporting cancer treatments, low spots, high spots, feelings, inpressions, etc..etc.

Is this something for you? Maybe….just be aware it is easy to set up….the directions on
www.blogspot.com are simple.

We love this so much, we have canceled our personal web site. We feel the BLOG is a great means of communciations for anything we want to let folks know about.

In summary:

A BLOG allows us a simple way to communicate a consistent and timely message to those who want to know.

A BLOG is easy to set up and easy to use.

A BLOG allows readers to communicate with us and provide incredible support in a timely way.

A BLOG allows us to post pictures, letters, cartoons easily.

………Dave

Saturday, August 29, 2009

Saturday...August 29th...2009

Today is open house day....Linda is having the Sisters home open today and tomorrow....we had a great prospect yesterday....and their home is sold!!!!!! So many people love our home BUT have their home to sell....sound familiar? We hope this new prospect works out....knowing there are so many homes on the market.....we will "keep the faith".....

A few updates:

Linda is doing well....I am struck by how much energy she has with stage IV cancer.....her attitude carries her to unbelievable places....I am often forgetting she has cancer and that it is "pushing to win". She is an inspiration ...

We want to acknowledge each and every one of you and your comments....they are not ignored or taken lightly....Linda and I look to them every day for strength and enlightenment ....we are a bit saddened when we hear someone has read the BLOG and not left a comment....we accept that for whatever reason there is....and want you to know that when you do leave a comment....even if one word.....it is taken to heart and gives much to us....and if you choose not to comment....please keep reading.

We are now putting together a summary of the BLOG communications to share with the DEFEAT CANCER program at St. Charles.....we will include our program summary on the BLOG when it is done......

We are watching Teddy Kennedy's funeral etc. closely....there is so much "gold" in what is being said....on how to treat others....what America should be all about....why it is so dysfunctional in our system at the moment and how many Americans have been "duped"....YES....we need and want health care for everyone....it is our obligations as Americans to support those less fortunate than us....and we see....with sadness...those who protest in a way to curb the truth from coming out ....having been fed senseless mean information that clouds insightful thinking and action. To have the sole mission of destroying our President whatever the issue is so the opposition can have a better chance of getting on firm ground is senseless and UNAMERICAN. End of speech.....

Thursday, August 27, 2009

Thursday...August 27th...2009

Big day today...lots of information for us to digest....

First...Linda met with her Oncologist today ....followed by an infusion of Avastin. The Oncologist used two new words: "symptomatic" and "asymptomatic"......meaning a showing of symptoms and not showing symptoms. He described Linda as "asymptomatic"...that is, she is showing no outward signs of cancer. This does not mean she doesn't have cancer (she does)....rather it means she is not showing any symptoms of the cancer advancing. It could show up as balance problems....persistent headaches harder to control....body pains.....etc....etc. This is good news. He indicated the cancer "seems to be stable".

Now what? The EGFR test was never performed.....the lab directed to do the test claimed not to have received the order....to which the Oncologist was not surprised as they have had this trouble with the same person in the lab before. The order will be resent. We talked about this test before....it measures a certain mutation which indicates whether another cancer drug....Tarcevia...will be effective....or better....how effective it will be.

EGFR: Genetic Changes in Tumor Can Predict Treatment Benefit for Patients With Non-Small Cell Lung Cancer. This study showed that for some people who have non-small cell lung cancer (NSCLC) with a mutation (change) to the epidermal growth factor receptor (EGFR) gene in the tumor, treatment with the drug Tarcevia slowed cancer growth. The EGFR gene produces a protein that helps lung cancer cells grow and spread. This is a type of targeted therapy that targets faulty genes and proteins that contribute to cancer growth and development.

The results of the EGFR test are performed on Linda's original biopsy which has been frozen. On the 16th of September Linda will have another scan performed with the results on the 17th....the course of action will depend on the scan results as well as the EGFR test results....these results will give the Oncologist direction as to how to proceed with the next course of action as well as actions down the line.

Again....the goal is stability....control the growth of the cancer.....

The Oncologist is going to summarize things with Linda's personal physician as she had a bone density scan planned and the Oncologist says it will not be valid as she is on a "bone builder"....so cancel that. He also said the Avastin infusions she is on will cause hypertension so Linda needs to be back on her blood pressure medication....he also questioned the mammogram as the treatments she is undergoing would deal with any breast cancer as well.....

Lastly, the Oncologist was a bit taken back when Linda reported that information she was given about the bone builder she was receiving could worsen cancer.....we showed him the warning on the packets in the infusion room...he indicated she had read it correctly and advised her to "quit reading". This was a bit of humor....he is contacting the pharmaceutical rep to discuss that with him as this is untrue.

We told you this was a "lot of stuff to digest"......and there is much more.

Linda's right ear (at the top) has been bothering her....very painful....she is nervous that it is another bout with skin cancer. She was scheduled to be with the skin doctor (dermatologist) in a couple of weeks to examine the MOHS surgery done on her face for the basal cell cancer. We decided to call the doctor and see if he could squeeze her in today rather than wait....and worry.....he did squeeze her in.

Is it a new sign of skin cancer....NO....it is Chonrodermatitis Nodularis Helicis (CDNH)....and we did NOT make this up. It is a painful inflammatory condition affecting the ear. It is a benign tender lump in the cartilaginous portion of the ear (particularly on the top where the skin is thin over the cartilage). It is caused by pressure between the head....ear ....and an object.

Linda is deaf in the left ear and the right ear has the CDNH...duh!....uses a phone to the right ear...sleeps on the right ear....depends on everything with the right ear...hence the formation of CDNH. Again...we are NOT making this up.....but it appears that Linda persists in coming up with "new stuff" no one has ever heard of!!!!!!!

What now...Linda has to avoid pressure of any kind on that ear....including sleeping....phone use....etc....etc.. How is that done with a deaf left ear....good question. If the inflammation is not reduced, the doctor performs a biopsy procedure.....and if that doesn't work, he does surgery, laying back the skin on top of the ear....removing the abnormal cartilage..and then putting the skin back with stitches.

How is Linda doing? Great....good attitude for what she went through today. We went to the Redmond hospital to see friend Roger.....who had sudden severe abdominal pain after returning home from foot surgery....to be operated on immediately for a diseased small intestine section as well as cancer in the colon.....he is not a happy camper.....we hope things brighten for him as he is a special guy.

We will "lie low" for a few days and then head to Anchorage for a week.....

Wednesday, August 26, 2009

Wednesday....August 26th...2009

Tomorrow Linda goes in for an infusion session as well as a visit with her Oncologist...he was off last time she had an infusion so it's been 6 weeks since she has seen him.....so she is looking forward to visiting with him. She also had her crown temporary come off...she stuck it back on...but a visit to the dentist is in order tomorrow also...he will also need to look at the inflammed gum she is experiencing.

We will then go to the Redmond hospital to see friend and former colleague Roger Traweek who was fighting a foot infection...we reported on that a while back...he had surgery...yesterday...then went home..then came right back with abdominal pains...they operated and found they had to remove some small intestine plus a cancerous tumor on his large intestine....he was there for Linda..now she will be there for him...he says he needs a "pep talk" from Linda...and she will do just that.

The motor home is stored away again....we are a bit tired..still...from the golf tournament and cleaning up the RV....we are a bit like "slugs" today...actually Linda has more energy than Dave....

Tuesday we head to Anchorage for a week's visit with brother Darron and sister in law La Velle.

Monday, August 24, 2009

Monday....August 24th...2009

A different day than planned today.....

We had planned on sleeping in....still in the motorhome....after four days of "golf work"....read a bit...soak a bit...and go to friends' home for dinner...then wander home to our house for bed.

Well....again...Mrs. Wood had a surprise to change it all.....her gum on one side was inflamed and throbbed.....so....off to the dentist we went.....and the motorhome went home and the car came back while she was in with the dentist. The inflammation was caused by material under the gum as she was not to use the water pic since she had her temporary crowns in....duh.....

Anyway...things were fixed and we headed back down the hiway to Sunriver for a delightful dinner and conversation with Dave and Sallie Hennessy.....

Linda's blood pressure is still high so she is calling the doctor tomorrow to get back on her old medication...or.....
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Sunday, August 23, 2009

Sunday....August 23rd...2009

The golf tournament is over...pheeeewwww!....a lot of work...a new experience...and really was fun. Linda did extremely well after the first day (overworked herself)...her blood pressure was erratic at times so she is calling her doctor tomorrow to see if another medication will be more effective instead of the one she was recently put on (to replace another one)....these are designed to lower the blood pressure but she wants to be able to lower it without "tanking" and to have it work when the pressure increases in a short period of time....

Where are the pictures of the tournament....there are none....cameras are forbidden at the tournament...especially for Marshalls.....so nope...none.

Had a great story today while working the 16th green....Fuzzy Zeller misses a putt and yells "Awe S#*&!...the crowd roars in laughter...then a voice from the crowd says "Fuzzy...are you going to use that ball again?". Fuzzy responds "HELL NO!!!" and throws the ball to the fan who asked the question....the crowd roars their approval again....

We did go out to dinner at Sunriver with Roman and Judy Saturday night..so a picture with them is attached.

Tomorrow we sleep in...relax....pack up....go to dinner at friends in Sunriver...and then home...
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Friday, August 21, 2009

Friday....August 21st...2009

2nd day of the Tradition, a major golf event on the Champions Tour....saw Tom Watson, Fuzzy Zeller, etc..etc up close today....kind of a thrill....our jobs allow us "under the ropes"....ie....up close to the players...

Linda started the day with a massive headache....blood pressure issues again....got it calmed down during the day....watched her close..she sat more today and tried not to do everything....so she had some "gas in the tank" at the end of the day.

Tomorrow we start and finish earlier because of TV scheduling..on NBC Saturday and Sunday.

Big volunteer party tonight....afterwards we went to bed early so we would not be burned out tomorrow....

Thursday, August 20, 2009

Thursday.....August 20th...2009

Thursday....first day on the "links" at the Jeldwen Tradition for the PGA Champions Tour....got to see a lot of golfers from "yesterday".....we worked too hard....no breaks....etc...etc.

Linda held her own but is very tired....but with a nap tonight.....and some dinner and she'll be "raring" to go....

Three more days....let it cool off please.....

I'm working with Linda tomorrow to make sure she gets the rest and all she needs.

Monday, August 17, 2009

Monday.....August 17th....2009

Pictures from Linda's balloon trip last Thursday....including Son Jim and Grand Daughter Jillian....the picture of the farm from the air is the farm that Linda's folks had..a dairy farm...now her brother and his kids own the farm...
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Last night Linda and Dave met in Salem after Dave's 5 day seminar and Linda's visitation of friends and family for 5 days. We headed east and stopped (well more than that..we had dinner and a nice long visit) to see friends Judy and Roman and Rhodie and Denny....the picture is of Linda and Rhodie....we enjoyed seeing them after a long absence....neat folks....

Tomorrow we head south in the motorhome for the Oregon Senior Open...Tom Watson...etc..etc..many of the famous golfers will be competing and we are working the event with Roman and Judy...

Linda seems very energized from her trip to see friends and family...tomorrow we stop to see her radiation oncologist, whom we haven't visited for 6 months...we have plenty of questions...






Monday....August 17th....2009

Still not asleep....the Woods' made it home to Sisters tonight....safely....about 12:30 am....to the neighbor's dog barking.....nice folks.

Linda is asleep....doing well....eager to see her hubby....whose 5 day assistance in a workshop on personal growth went well....

Tomorrow (really today)....pictures from this past week.

Friday, August 14, 2009

Friday ...........August 14, 2009

Dave said I was on for the blog, so even though it's past my bedtime, I'll do my best.

I've been busy during these days apart from Dave doing girlfriend visiting. We're so seldom apart, that I figured I'd better take advantage of the time, and it keeps me from getting lonely.

Wednesday I took Granddaughter Jillian to Costco's gourmet restaurant for pizza where we met Jillian and sister-in-law Joni for a shopping spree. How's that for a creative afternoon?

Yesterday I went for a hot air balloon ride with son Jim and Jillian. The weather was great and we got to float over the family farm. They fed us a great breakfast with mimosas afterward. By lunch I was in St. Paul (high school town) having lunch with old high school friends. I spent all afternoon there meeting more friends and having a great time. Needless to say, I was exhausted by bedtime having had such a full day, but it was worth every minute. I told my friends if the cancer doesn't kill me, my bucket list will.

Tonight I had dinner with friends Nancy and Ginnie and daughter Janine. Tomorrow morning I pack up and head to Salem where I meet more friends and stay over with sister Karen.

I'm feeling great other than my concern with my cough. I'll definitely be talking to the doctor about it next visit.

Sorry I'm not as entertaining as Dave, but I did the best I could. I took pictures, but Dave forgot to give me the cord for downloading them onto the computer, so they'll come later.

Love and gratitude......Linda

Thursday, August 13, 2009

Thursday...August 13th..2009

Linda did her hot air balloon ride today and had a wonderful ride with Grand Daughter Jillian and Son Jim...she then had lunch with friend Claudia...tomorrow she meets with our bankers in Portland in the morning and friend Nancy in the afternoon....how do I know all this?...she told me by phone as Dave is in the middle of a 5 day seminar in Eugene....

Tomorrow Dave will have Linda give the BLOG information so you hear things first hand...

Tuesday, August 11, 2009

Tuesday....August 11th...2009

Dave is in Eugene preparing for a 5 day Wings seminar....grounding occurred tonight..ready to go...

Linda is in Tualatin with Daughter Janine....with a schedule of folks to meet and spend time with....and the balloon trip on Thursday...

That's about it!

Sunday, August 9, 2009

Sunday....August 9th...2009

All home safe and sound.....

Linda is doing well..having slept most of the trip home today...good for her.....

Tomorrow it's fix a few things on the RV....put it back in storage....go to the library....finish washing clothes...etc...etc..

Tuesday we head back to the Valley as Dave is doing a Wings Seminar for the week and Linda then heads to Portland to rest and see some friends and do a balloon ride Thursday with Son Jim and Grand Daughter Jillian.....

After the week, we plan a few short motorhome trips to new areas in Central Oregon to sit....rest....and read books....

September 1 we head to Alaska for a week of visitation with Brother Darron and Sister in Law LaVelle.....

Saturday, August 8, 2009

Saturday....August 8th...2009

Last night on the coast....

Linda is doing well....blood pressure under control....the medication is working well....

Smoores over the campfire finishes the night...
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Friday, August 7, 2009

Friday....August 7th...2009

Day 3 at the Oregon coast....Day 2 for the kids and all...

Linda added some excitement yesterday by developing a severe headache....nothing seemed to tone it down...she went to bed early in hopes of solving the problem...to no avail....and then this morning she figured it out...high blood pressure...the Doctor had taken her off the blood pressure medication two weeks ago because of extremely low blood pressure....over the last two weeks it started creeping back up...last night and this morning it was alarmingly high....

Of course she didn't have any medication to deal with it...but was able to use Dave's ...it is different but once before when she ran out of hers on a trip, the doctor said to use his...and guess what...headache went away...most of it anyway....

Linda called the clinic and they prescribed exactly what Dave has been taking...as hers was too high of a dosage for what they wanted to try....

Anyway, everything is under control now....

Today was a day of exploring downtown......rides on bumper cars....carosel....etc....with a dinner by the campfire tonight..

Thursday, August 6, 2009

Thursday...August 6th...2009

At the Oregon coast..cloudy of course after arriving yesterday to bright sunshine.....Grand daughter Jillian is with us...Daughter Janine, Wendy and Son in law Chris and Grand daughter #2...Taigen...arrive later today....

Linda is sleeping a lot today...resting in anticipation of the oncoming crowd.....plus she stayed up last night to watch a movie with Jillian.

Tuesday, August 4, 2009

Tuesday....August 4th...2009

At home..made a quick run home from Portland to get some tasks done and Linda does an infusion session in the morning..then it's back to Portland...pick up the motorhome..pick up Jillian, the Grandchild.....go to Seaside on the coast for 4 days with daughter Janine, daughter Wendy, Son in law Chris and Grand daughter Taigen....

Linda did well yesterday....we went out with her friend Claudia for dinner...Linda slept well..

We shall see what the doctor says tomorrow before the infusion....Linda still has some coughing and we are not sure if it is left over from the bronchitis or cancer related....not nice to be confused.

Next week, Dave has a Wings seminar......and Linda will be entertained by all in Portland for the week.

Below are pictures from our last day at the Jamboree....Upon seeing the pictures, I forgot to mention that Linda's niece Jen and her husband Mark and daughters Zoe and Ava drove up to the Jamboree to see us. They are from San Diego for Jen's high school reunion....we were pleased they came up to visit us...and Linda put together a great picnic dinner for all...then we went to see Montgomery Gentry...who were great....
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Sunday, August 2, 2009

Sunday...August 2nd...2009

Good days of Jamboree...LeAnn rimes last night...Linda held up well....hot weather but not stiffiling....tomorrow Portland...
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Saturday, August 1, 2009

Saturday....August 1st...2009

Hot today already..hot yesterday...the good news is it is not as hot as the other day...or as hot as Phoenix, Arizona.

Great Jamboree yesterday...Lee Ann Rimes today....Tim McGraw spectacular last night.
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Linda is doing well..good blood pressure...still some coughing...
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