Another very complicated day....things have gotten more difficult as decisions have to be made as to directions to take with the clinical trials and targeted therapies not in the picture anymore.
Linda showed today to begin the chemo program only to find that an infection she had been fighting might hold things off.....but a test showed she had successfully completed getting rid of the infection and could have proceeded....but in the meantime, a discussion with the Oncologist took place regarding the cough that has been a big thing in disrupting Linda's quality of life.
Long story short.....Linda decided to set the chemotherapy back a while and explore radiation as an option to deal with the area of the lung...which clearly showed the problem....that is the source of the coughing. She will meet with the Radiation Oncologist either tomorrow or most likely Monday to see if radiation is a viable option...and if so radiation would take place daily for two weeks followed by the chemotherapy.
The ostomy take down was discussed and it was agreed that it is no longer a viable option.....the surgery would be too hard on Linda and definitely not worth the trouble....
The Oncologist was clear that there is no way out of this at this point..nor anything on the horizon....no other clinical trials or miracle drug or....what is going to happen at this point is to use a variety of available drugs to keep the cancer from getting too far ahead....
Our discussion with the Oncologist covered what has happened over the past few months and he understood the "rollar coaster" ride Linda has been on....and indicated it was not abnormal to have this occur at this stage in the process.....some things not clear to us at the time now make sense in looking back and hearing from the doctor.
Linda has decided to be upbeat and not worried about statistics....she looks to the support of her friends and family....as we have heard many times...attitude and surroundings can have a significant impact on duration and quality of life....so she looks to you for support....again, it is not about worrying about what happened or the unfairness of it all....it's about being in the moment..living it. As the sign at the store as we traveled home said "Every day is a new day unless we drag in the past"
Thursday, October 21, 2010
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7 comments:
There are so many thoughts and feelings I have had since reading yesterday's blog and I am not sure of exactly what to say except that I am so inspired by your decision to not dwell on the negative but live in the positive. We are here to support and love you any way we can and look forward to more wonderful times and memories made, especially during the upcoming holiday season! <3
Taigen wanted me to send her love especially and wants to draw you a heart...so picture a virtual heart from her until we can get it drawn and in the mail.
We love you!
Wendy
Okay, you two. Just keep moving forward and don't look back. You have a great deal of living yet to do, so there's no reason to slow down or get bogged in "what-if" scenarios. You simply can't do it.
This adventure we all are on in our lives takes us to strange and unexpected places. But, we must always look forward and must always enjoy what we have today, no matter the temptation to hide. Do not let your fears get the better of you. Be brave, be strong and live life!! You both have very clearly done exactly that up to this day in your life. Keep at it!
You continue to be an inspiration to all of us who are your friends and supporters. We're here with you, come hell or high water, and we will hold you up through any struggles that may come your way.
Have some fun today, you two. Have a laugh, enjoy each other's company and live large.
I love you both dearly. Always will. I'm here any time you need me. As are all your friends, I'm certain.
My love to you both, as always.
Mama Linda- Stay strong and keep your chin up. The past is the past and the future is now, you have so many people rooting for you!!!! ...sending many big hugs your way. Lindy and Family
I'm still digesting yesterday's news so I'm not quite sure what to say today. I just want you to know that I support you both in all things. To be honest, I was a little bit afraid of a treatment that could burn out a port (!). Goodness what would that do to a person? So I'm glad you're working on the most immediate problem, the coughing, in a more manageable way.
The course for the future is definite treatment. I like the sound of that.
Love to you both,
Marjorie
Linda, you have come a long ways and you will keep on going and get over this bumpy in the road. We all will be out here cheering and praying you on.
Just don't lose that SMILE
and that winning attitude.
Love you,
Janet
Linda and Dave, The sign in the store says it all. We all need to live each day to the fullest. Our prayers continue to flow to you and you both are in our thoughts each day. Enjoy today!
Julie and Bob Brown
Linda and David,
You are loved! You are both continually in our thoughts and prayers as you continue to face the future with a positive and loving attitude. You ARE an inspiration!
Again, with love,
Ann & Dick Ashley
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